Pediatric Support Groups
Making connections for support, understanding, and information
Each parent of a child with special needs approaches their situation in their own unique way. Having the support and understanding of other parents who have walked in your shoes can provide a priceless measure of comfort and connection. Nobody truly knows how you feel than a parent who is or has been in your shoes.
Sharing experiences, suggestions, and resources can help relieve some of the stress you may feel. Sometimes it just helps to connect with someone who wants to listen because they’ve “been there.”
Disease-specific organizations can provide information and facilitate support groups for families and individuals. Some BAYADA Pediatrics offices offer support groups so that parents can connect and find companionship in their community. link opens in new tab Contact your local office to find out if there is a support group in your local area.
Below are some national organizations that may be able to provide support and assistance related to either your child’s diagnosis or, more generally, to parents of children with special needs:
- Parent to Parent programs across the country provide emotional and informational support to families of children who have special needs.
- United Cerebral Palsy (UCP) educates, advocates, and provides support services to ensure a life without limits for people with a spectrum of disabilities.
- Autism Speaks has a wide array of resources and information for families affected by Autism Spectrum Disorders.
- Parents of Special Needs Kids helps connect local parents of children with special needs, regardless of diagnosis, in their local area.
- Muscular Dystrophy Association (MDA) is the non-profit health agency dedicated to curing muscular dystrophy, ALS, and related diseases by funding worldwide research.
- The Epilepsy Foundation helps individuals and families affected by epilepsy and related neurological impairments by providing education, advocacy, and services.
- The National Down Syndrome Society is the national advocate for the value, acceptance, and inclusion of people with Down syndrome.
- Families of SMA is an international support group and resource center for Spinal Muscular Atrophy.
- Daily Strength offers a variety of online support groups.